“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”
And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection.
As someone who has watched a family member die from a neuro-degenerative disease; funding to develop better wheelchairs and bedsore creams is *just* as important as funding research to cure the disease itself…
A friend of mine posted an update from one of HER friends to FB earlier. Her dad has ALS. The ALS foundation came out to see if they could put in a ramp for his wheelchair, but they couldn’t afford it because of the kind of ramp he needed for the kind of house they had.
This week they called back and said hey, the thing is, we suddenly have a bunch of money, so we’re coming out to build that ramp. And they did. She posted pics.
So if you feel like bitching about the ice bucket challenge…reconsider.
Cheers to PepsimanGB for subtitling the trailer Tecmo Koei put out last week for Fatal Frame: The Raven-Haired Shrine Maiden. I was one of the people who asked for subtitles when he offered to put this video together, so it would’ve been a jerk move if I didn’t share this after he went through all that trouble.
Again, this releases for the Wii U in Japan on September 27.
This may be the happiest I’ve ever been to write a post. Last year, as many of you probably remember, we held a crowdfunding campaign to help a family with adoption fees. The Watkins family had already adopted an eight year old daughter from Ethiopia. They were so happy with their new family, they decided to adopt a ten year old boy named Rabuma, who they had discovered in an orphanage. They knew that Rabuma was destined to be their new son, but were heartbroken because they didn’t have the money to bring him home yet. 4,000 of you donated to help make this family a reality. Over the past year, the Watkins have been sending me periodic updates, but I didn’t want to share them because I didn’t want to jeopardize the process. But everything just finalized. By a beautiful coincidence, the Watkins happened to pick up Rabuma while I was in Africa. So between destinations, I took a two hour detour to Ethiopia to photograph the occasion. It was such an honor for me to be present at the birth of this new family. The love that had already developed between them just filled the room.